top of page

The History Behind “Words That Heal” and “There Are Words In Us”

I have been writing poetry since high school as a way to put words to my emotions, especially in times of stress. So after I was diagnosed with Parkinson’s Disease nearly 9 years ago, I turned to poetry to help make sense of the overwhelming emotions I was experiencing.

There is a body of research in cognitive science suggesting that the onset of Parkinson's disease may produce a creative impulse in some individuals. That creative impulse seeks an outlet (be it art, music, dance, or in my case, poetry). And when the creative impulse is expressed, it helps to soothe us.

About a year and a half after my diagnosis, I started IPM’s training program to become certified as a Practitioner of Poetic Medicine. During the training program, I experienced the healing power of poetry myself. I realized that writing poetry was helping me to cope with the complicated changes in my body and mind.

Over the past 6 years, I have offered therapeutic poetry programs in schools, homeless shelters and mental health aftercare settings. But I wanted to also help people like myself with Parkinson’s. In 2021, I developed a healing workshop series especially designed for individuals impacted by Parkinson’s — both those who have Parkinson’s and their care-givers. In the Fall of 2022, I led the inaugural group of individuals through the program.

I named the poetry series There Are Words In Us after the title of a poem by Stephen Levine. Levine says:

“…Hope has put a pen in our hand for us to find our song…”

The overall goal of the series is for each participant to experience poem-making as a healing art. We explore our feelings about living with Parkinson’s Disease by reading, writing and sharing poems in a safe and supportive environment. No prior experience with poem-making is necessary.

The 8 sessions series loosely follows the documented stages of meaning-making after the diagnosis of any chronic and progressive disease. But I also relied heavily on my own experience of working through my feelings. I believe that discovering meaning enables us to better cope with difficulties and find strength.

Each session explores an emotional component of coping and living with Parkinson’s.

For example, an early session is called A Just Anger after a poem by Marge Piercy. In this session we explore the anger or other emotions (sadness, fear, denial) we experienced upon learning we or loved ones have been diagnosed with Parkinson’s. Piercy uses relevant and powerful metaphors in her poem to describe her anger such as “I am a burning bush” and “My rage is a cloud of flame.”

Also in this session, we explored what held us together during those early days. We read this poem by former U.S. Poet Laureate William Stafford:

The Way It Is

There’s a thread you follow. It goes among

things that change. But it doesn’t change.

People wonder about what you are pursuing.

You have to explain about the thread.

But it is hard for others to see.

While you hold it you can’t get lost.

Tragedies happen; people get hurt

or die; and you suffer and get old.

Nothing you do can stop time’s unfolding.

You don’t ever let go of the thread.

~ William Stafford

Here is a poem written by one of the group members in response to Stafford’s poem:

The Thread 

I braid a rope out of hope

and equal measure pragmatism and denial

tie it to the tallest tree in the forest of my fears,

and hurl it across the rocky canyon of the unknown

trusting it will find purchase on the other side.

a lifeline

a tether

a tightrope

a noose

All and all and all of these

I grab with curled toes

feel my balance reconcile

follow the thread as it disappears into the fog

knowing if my feet should falter

it will reweave itself into a net,

make lacework of my worries 

a cocoon of grace 

to cradle me onward. 

~ Ashley Romberg

Other topics we touch on in the series include grieving our losses, anxiety about our futures, letting go, surviving, adopting fresh perspectives, and building community.

Thanks to the generosity of IPM, this 8-week series is being offered again in the Winter of 2023 and again in the Fall. If you or someone you know might be interested in participating in a future round, please share this page, contact IPM or send me an email at

116 views0 comments


bottom of page